BLOOD CLOTTING DISORDERS

Resources: Thrombophilia

The National Alliance for Thrombosis and Thrombophilia (NATT)

A community-based nonprofit dedicated to research, education, support and advocacy on behalf of those at risk of or affected by thrombosis and thrombophilia.

www.nattinfo.org

FVLeiden.org

Organized by and for people living with factor V Leiden mutation, this site features introductory information for the newly diagnosed, an extensive Ask the Doctor section, related links, and an active, 1,000+ member online email support group.

www.fvleiden.org

Genetics Home Reference: Thrombophilia

The U.S. National Library of Medicine has basic, introductory information about factor V Leiden on its Genetics Home Reference web site. This is a helpful site for educating family members about the basics.

http://ghr.nlm.nih.gov

 

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